Mac Medical Modifications

From: MarkMilem@aol.com
Date: Sun, 28 May 1995 09:13:38 -0400
Subject: Mac Medical Modifications, etc. (S) (long)

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I have been remiss about my promise to summarize to the list.

Back on 17 Feb, I said:

>A friend of mine has a relative who suffers from ALS and he is interested in
>any support groups/information that might be available here/on the net.
>
>He is also interested in adapting technology to help when various bodily
>systems start to fail.  Is there any information on use of Macs for
>quadriplegics and the like?

I have chosen some of the replies as representative and edited those for
length.  Any errors should be considered mine.

First about online ALS support groups.  Bob Broedel <bro@huey.met.fsu.edu>
runs a mailing list whose header follows:

>===============================================================
>==                                                           ==
>==        ----------- ALS Interest Group -----------         ==
>==            ALS Digest (#175, 17 February 1995)            ==
>==                                                           ==
>==  ------ Amyotrophic Lateral Sclerosis (ALS)               ==
>==       ------ Motor Neurone Disease (MND)                  ==
>==            ------ Lou Gehrig's disease                    == 
>==                 ------ Charcot's Disease                  ==
>==                                                           ==
>==  This e-mail list has been set up to serve the world-wide == 
>==  ALS community. That is, ALS patients, ALS researchers,   ==
>==  ALS support/discussion groups, ALS clinics, etc. Others  ==
>==  are welcome (and invited) to join. The ALS Digest is     ==
>==  published (approximately) weekly. Currently there are    ==
>==  490+ subscribers.                                        ==
>==                                                           ==
>==  To subscribe, to unsubscribe, to contribute notes,       ==
>==  etc. to ALS Digest, please send  e-mail to:              ==
>==  bro@huey.met.fsu.edu  (Bob Broedel)                      ==
>==  Sorry, but this is *not* a LISTSERV setup.               ==
>==                                                           ==
>==  Bob Broedel; P.O. Box 20049; Tallahassee, FL 32316 USA   ==
>===============================================================

- From Tim Nolan <timnoln@mcmail.cis.mcmaster.ca>:

>There is an organization in Minneapolis called "Closing the Gap". They 
>have more technology resources info than imaginable. They also put out a 
>regular newsletter. Unfortunately I don't have a contact address, but I 
>don know they are in Minneapolis.
>
>Also, a great list group is available through St. John's U. in NY 
>called project EASI. EASI can be contacted at easi@sjuvm.bitnet. The EASI 
>list is full of great information and contacts.

Finally, on the topic of Mac related hardware modifications, the following
from ann gutting (?) <agutting@indiana.edu>  or  <skripka@aol.com>:

>I found some information which may be of help. The Apple ftp site:
>ftp://ftp.apple.com/apple/disability-solutions/
>has several _very_ informative files.
>
>1. The  Q&A from Apple includes product names and contact information.
>
>2.  The FilemakerPro database,  MDR (Macintosh Disabilities Resources), is
>excellent.
>
>To contact them directly:
>
>Apple Computer, Inc.
>    Worldwide Disability Solutions Group
>    One Infinite Loop,  MS 38-DS
>    Cupertino, CA  95014
>
>   (800) 776-2333 - voice
>   (800) 833-6223 - TTY

Thanks to all who responded.  I hope this helps someone else.

- -Mark Milem
markmilem@aol.com
72254.3244@compuserve.com
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